ARRRGGGG!

OK after several days in the PICU for seizures they have sent us home. That's the good news. The bad news is that we get to go back less than 48 hours from now. We have to be there on Mon at 11am to get a feeding tube. They wouldn't do it while we were there and couldn't justify us staying or bringing the GI doc's in on a Sat. Boy will I be glad when life isn't on hold any more.